"Once I heard a transplant surgeon reprimand a resident for talking
too long with a patient when there were so many others to see.
'Save lives first, answer questions later,' he said. Patients and
families acknowledged the truth in that statement. The surgeons
were so busy jetting through the night to retrieve organs, then
standing on their feet in the operating room to transplant them, then
rounding to make certain their patients' medications were effective,
that they couldn't really afford to invest time or energy in conversation.
Still, understanding why the transplant team members were often so
insensitive did not eradicate patients' hurt and resentment. I remember
one person commenting with great bitterness, 'My doctor knows what
my liver looks like, but not my face.'"—Lee Gutkind, from the Introduction
In these often intense and searing personal essays, a lawyer
describes her seesawing emotions over a misdiagnosis of what she
was told was an inoperable tumor—and her anger at her physician's
cavalier attitude about the mistake; a physician formerly employed by
an HMO rails at the accepted practice of managed care organizations
finding legal loopholes to trump a patient's needs; a physician wrestles
with the idea of doctors policing themselves, knowing he is powerless
in the face of an incompetent colleague.
An expansion of a special issue of the journal Creative Nonfiction,
this volume of essays by patients and their caretakers, physicians, and
health care providers is intended to serve as a foundation for future
dialogue and a means to begin to heal the wounds in our health care
system.
The accompanying 80-minute audio CD contains three of the essays
read by actors and a panel discussion of the ethical dimension of the
issues raised.
"Pain and cancer, death and depression, are our collective adversaries. We
are all being helped and, unfortunately, hurt by the health care system."
—Lee Gutkind
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LEE GUTKIND is the founder and editor of Creative Nonfiction. He
teaches in the Creative Writing Program at the University of Pittsburgh
and is a prolific author whose diverse works include Forever Fat: Essays
by the Godfather; The Best Seat in Baseball, but You Have to Stand: The
Game as Umpires See It; Many Sleepless Nights: The World of Organ
Transplantation; and Stuck in Time: The Tragedy of Childhood Mental
Illness. He has edited many collections, including A View from the
Divide: Creative Nonfiction on Health and Science.
Medical Humanities Series, Thomas Mayo, series editor